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From my own experience, I kinda wished I had known about all the gene issues before I had my children, because now I have 3 children with the same gene mutation and a huge chance of getting cancer before the age of 16. I also am so worried because I was stage 2a too, and I kept telling myself that I was practically stage 1, then 23 months later I find out I have liver and bone mets - just like my mother (who died at 33).
My advice would be - to find answers to these questions...
1. Can you be happy with the "worst" case scenario?
2. If you got cancer again, and you were told you were Stage 4, how you would feel about this baby?
3. If you were told you had a genetic condition, that your new baby tested positive for 3 months into the pregnancy, how would you handle that news? 4. Even if they didn't find the gene now, how would you feel if your daughter had the same risk as you? (My mother and I both got er- early stage bc during pregnancy at age 28 - then both of us were stage 4 even though it was "early")
I hate to rain on the parade, but bringing a baby into the world, with all the risks probably would have made me make a different decision if I had known. Because now my children run the terrible cancer risks (my 6 year old daughter is battling adrenal cortical carcinoma as we speak).
I would probably wait 3 years, and then find out about genetic testing before conceiving. If you are under the age of 40, I would greatly suspect genes.
The ER+ thing would make me VERY nervous with only 2 years out. Did you have a bilateral mastectomy + radiation? If there is no breast tissue left, you might be ok. But I have long said since both my mother and I got dx during pregnancy, that it is very risky to mix pregnancy and BC. Though no docs have ever really backed me up on it.
Good luck with your decision, I wish I had the chance to do it all over again.
Last edited by julierene; 01-01-2006 at 10:04 AM..
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