HER2 Support Group Forums - View Single Post - Brain MRIs for early stage....consensus??

AlaskaAngel · 12-15-2005, 10:26 AM

Good morning all.

For starters, I am either a definite minority or incorrectly classified by IHC as +++, since I am triple-positive.

I had an appointment this week with an onc this week who specializes in bc and genetics, since I have a significant family history that includes ovarian cancer as well. (I participated in one of the early detection for ovarian cancer clinical trials for 3 years.) The family history includes the aunt who died of ovarian cancer and another aunt who died of bc mets to the brain.

I find it puzzling that the onc thinks I should consider having my ovaries removed (due to the difficulty in detecting ovarian cancer, considering that the risks for that increase with age), but had no recommendations about the identical family history of an aunt with brain mets from bc, considering that I am HER2+++. It would be my thought that brain mets is equally difficult to discern. Thanks to this site we do know that often there are NO symptoms.

In addition I am curious about something else. Right after my third CAF chemo treatment, early one morning I was sitting working at the computer and suddenly lost my eyesight. My eyes were wide open but all I could "see" was nothing although it wasn't black. I felt a fluid wave that started at the base of the head and slowly went up the back of the head and over the top and down the forehead. After about 3 minutes my vision came back. The fluid wave was distinctly different in temperature. I wish I knew what that represented. (?BBB?) Has anyone had a similar experience?

AlaskaAngel

P.S. Then again, what if I had an MRI and there was NOTHING at all in there....

12-15-2005, 10:26 AM	#15
AlaskaAngel Senior Member Join Date: Sep 2005 Location: Alaska Posts: 2,018	Mri Good morning all. For starters, I am either a definite minority or incorrectly classified by IHC as +++, since I am triple-positive. I had an appointment this week with an onc this week who specializes in bc and genetics, since I have a significant family history that includes ovarian cancer as well. (I participated in one of the early detection for ovarian cancer clinical trials for 3 years.) The family history includes the aunt who died of ovarian cancer and another aunt who died of bc mets to the brain. I find it puzzling that the onc thinks I should consider having my ovaries removed (due to the difficulty in detecting ovarian cancer, considering that the risks for that increase with age), but had no recommendations about the identical family history of an aunt with brain mets from bc, considering that I am HER2+++. It would be my thought that brain mets is equally difficult to discern. Thanks to this site we do know that often there are NO symptoms. In addition I am curious about something else. Right after my third CAF chemo treatment, early one morning I was sitting working at the computer and suddenly lost my eyesight. My eyes were wide open but all I could "see" was nothing although it wasn't black. I felt a fluid wave that started at the base of the head and slowly went up the back of the head and over the top and down the forehead. After about 3 minutes my vision came back. The fluid wave was distinctly different in temperature. I wish I knew what that represented. (?BBB?) Has anyone had a similar experience? AlaskaAngel P.S. Then again, what if I had an MRI and there was NOTHING at all in there.... Last edited by AlaskaAngel; 12-15-2005 at 10:29 AM..