HER2 Support Group Forums - View Single Post - brain mets

12-15-2005, 01:16 AM

You didn't mention the size of the tumor but if it is a solitary lesion, why can't they just remove it with surgery? Is the location a tricky one? Would you get a second opinion to be sure it is tumor and not radiation damage?

I had rads to a brain met 19 months ago. 7 months ago it started to grow again and I have had scan after scan after scan. They still can't decide if it is tumor or something called radiation necrosis but I had a test called an MRS ( magnetic resonance spectroscopy ) that measure chemical levels in the brain and this seems to indicate it is not tumor so we are all just "watching" it.

There is another support board called the cyberknife patient support group that has doctors on it who are wonderful and answer questions. It has been very helpful to me.

Best of luck, don't be scared, just think about another opinion from someone who does a LOT of brain lesions.

12-15-2005, 01:16 AM	#2
Unregistered Guest Posts: n/a	You didn't mention the size of the tumor but if it is a solitary lesion, why can't they just remove it with surgery? Is the location a tricky one? Would you get a second opinion to be sure it is tumor and not radiation damage? I had rads to a brain met 19 months ago. 7 months ago it started to grow again and I have had scan after scan after scan. They still can't decide if it is tumor or something called radiation necrosis but I had a test called an MRS ( magnetic resonance spectroscopy ) that measure chemical levels in the brain and this seems to indicate it is not tumor so we are all just "watching" it. There is another support board called the cyberknife patient support group that has doctors on it who are wonderful and answer questions. It has been very helpful to me. Best of luck, don't be scared, just think about another opinion from someone who does a LOT of brain lesions.