HER2 Support Group Forums - View Single Post - Brain MRIs for early stage....consensus??

StephN · 12-14-2005, 02:23 PM

Dear Robin -
At the Symposium there is an area where the posters are blown up and mounted on large boards. Ms. Tham was at hers for discussion and Ginger and I happened to zero in on that one.
As stage IV survivors maintained on Herceptin we asked her if anyone like us was included and she said "no." The time period involved is really Pre-Heceptin and she felt that this would be a separate group that would need its own study. The fact that more of us are able to survive through the other distant mets leaves us open to a higher chance of CNS (Brain) mets.

In other words Ms. Tham felt that not enough patients on Herceptin were included in her large number to make a difference.

She was interested that we stopped to introduce ourselves and take in her study results. She seemed to be more of a statistician than one who deals directly with patients - MHO.

This was a HOT topic.

12-14-2005, 02:23 PM	#6
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Talked to Ms. Tham Dear Robin - At the Symposium there is an area where the posters are blown up and mounted on large boards. Ms. Tham was at hers for discussion and Ginger and I happened to zero in on that one. As stage IV survivors maintained on Herceptin we asked her if anyone like us was included and she said "no." The time period involved is really Pre-Heceptin and she felt that this would be a separate group that would need its own study. The fact that more of us are able to survive through the other distant mets leaves us open to a higher chance of CNS (Brain) mets. In other words Ms. Tham felt that not enough patients on Herceptin were included in her large number to make a difference. She was interested that we stopped to introduce ourselves and take in her study results. She seemed to be more of a statistician than one who deals directly with patients - MHO. This was a HOT topic.