HER2 Support Group Forums - View Single Post - HER-2 Positve BC Doubles Risk of Brain Metastases

StephN · 12-13-2005, 06:18 PM

Under INDEX on the HOME page you will find a list of items.

Click on METASTATIC BRAIN TUMOR and you will get a whole host of links to all kinds of articles and sites dealing with brain mets.

As for symptoms, there is a long list and what they are may be caused by different areas of the brain affected.

Numbness in the arm or hand
Seeing "stars" or other sudden vision difficulty
Headaches that are worse in the morning and get better during the day
Balance problems - wobbliness

These are some of the main ones.
As for ME - I had NO symptoms. I Just have an annual screening ever since I became metastatic. Some of you gals who are newer on this board did not go through the whole spate of board members who came up with brain mets earlier this year. Maybe do a search and see what they all had to say.

One thing that shocked me was the comment by one lady who is a 25-year survivor and is active with another support group. There she was in San Antonio and told me that it was news to her that the chemos and Herceptin DO NOT cross the blood-brain barrier! How can she support people when she lacks such BASIC knowledge of the workings of these drugs???
Good thing we had those little brains as ice-breakers so that we could "break the news" to some people!!

12-13-2005, 06:18 PM	#6
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Chack this site for info Under INDEX on the HOME page you will find a list of items. Click on METASTATIC BRAIN TUMOR and you will get a whole host of links to all kinds of articles and sites dealing with brain mets. As for symptoms, there is a long list and what they are may be caused by different areas of the brain affected. Numbness in the arm or hand Seeing "stars" or other sudden vision difficulty Headaches that are worse in the morning and get better during the day Balance problems - wobbliness These are some of the main ones. As for ME - I had NO symptoms. I Just have an annual screening ever since I became metastatic. Some of you gals who are newer on this board did not go through the whole spate of board members who came up with brain mets earlier this year. Maybe do a search and see what they all had to say. One thing that shocked me was the comment by one lady who is a 25-year survivor and is active with another support group. There she was in San Antonio and told me that it was news to her that the chemos and Herceptin DO NOT cross the blood-brain barrier! How can she support people when she lacks such BASIC knowledge of the workings of these drugs??? Good thing we had those little brains as ice-breakers so that we could "break the news" to some people!!