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Old 12-12-2005, 02:41 PM   #3
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Wink Special patient advocate session

YES!
There was a special session just for the advocate groups hosted by Bayer Healthcare and their partner DAKO. It was a 7a.m. deal and Christine and I went together to represent the HER2 group. Joe and Ginger went to another important breakfast meeting so we had to split up.

We had a presentation by Dr. Colomer from Spain who has done extensive research using this test. He explained it thoroughly. We also met the bigwigs from both companies who wanted to have some contact and feedback from us grassroots groups. There was a lot of discussion as to what they can do to help the patients have access and info on this test. I think we will see it in wider use as a result.

Dr. Walter Carney, who is the main developer of this test, was also at the meeting and most approachable. He had sent a PowerPoint presentation on this test to Joe who had it reproduced. Thus we had the CDs at our booth to pass along with all the other info. A lot of the docs who stopped by (from all parts of the world in fact) were quite interested by this idea of a blood screening and some took more than one copy of the CD to pass to collegues. Dr. Carney said he will send a list of the labs that he knows can provide the test. It should get posted.

There was one session on serum screening, but I think it may be another test in development. Can look it up later when I have time.
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