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12-10-2005, 07:08 PM

I found out about a year and a half ago, after the dx of me with BC and my daughter with Adrenal cancer, that we have Li-Fraumeni Syndrome. It really helped to explain all the cancer of young people in my direct line of relatives. The p53 gene is only 1 gene too. First I wondered if we had a BRCA gene, then I just knew it was something else when my daughter was dx. No matter how healthy I have been, I got dx with Stage 2a and I still got bone and liver mets with no lymph nodes positive. I had a bilateral mast. followed by 4AC and 4 Taxotere, then had my ovaries removed cause they were worried about possible ovarian cancer with my family history. My cancer was er-, her+++, and 2cm, IDC, 0 nodes positive. It still came back 2 yrs after dx. The biggest kicker about it all is that the same exact thing happened to my mother - almost to the tee... I just hope Herceptin/paraplatin/taxol + rad will help me outlive her age of 33. It's bad luck in the gene pool.

12-10-2005, 07:08 PM	#13
Unregistered Guest Posts: n/a	Genes I found out about a year and a half ago, after the dx of me with BC and my daughter with Adrenal cancer, that we have Li-Fraumeni Syndrome. It really helped to explain all the cancer of young people in my direct line of relatives. The p53 gene is only 1 gene too. First I wondered if we had a BRCA gene, then I just knew it was something else when my daughter was dx. No matter how healthy I have been, I got dx with Stage 2a and I still got bone and liver mets with no lymph nodes positive. I had a bilateral mast. followed by 4AC and 4 Taxotere, then had my ovaries removed cause they were worried about possible ovarian cancer with my family history. My cancer was er-, her+++, and 2cm, IDC, 0 nodes positive. It still came back 2 yrs after dx. The biggest kicker about it all is that the same exact thing happened to my mother - almost to the tee... I just hope Herceptin/paraplatin/taxol + rad will help me outlive her age of 33. It's bad luck in the gene pool.