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tammymarie1971 · 12-01-2005, 01:33 PM

Hi Toni...I too am a stage 4 survivor..I was re diagnosed in mar'04 with liver mets..I had a liver resection in Aug'04 and just had scans done last week liver is still clean!! I only had 1 met to the liver but they prognosis was still grim they said!!! I had 3 rounds of herceptin/taxol first which shrunk the tumor in half than I had surgery and another 3 rounds of herceptin/taxol..Now of course knowing what I know now I would have insisted on at least a year of herceptin...I am back on herceptin now though and am grateful!! Wait until Gina posts she had liver mets in '99 and her liver is also clean!!There is a lot of hope out there. DON'T EVER LET THEM TAKE YOUR HOPE!!!! Crap it ticks me off so much when doctors give a prognosis who are they??GOD? I think not!!!I am so glad there are so many women here who CHOSE not to obey their doctors' prognosis!!!!!Take care Toni..Come to us often..When I read how your husband was overwhelmed with emotion over all the posts I felt my heart swell for him...Our poor husbands!! They want to "fix" us so bad and can't.. it must be really hard for them..big (((hugs))) to your husband and all our husbands!!!
Tammy

12-01-2005, 01:33 PM	#9
tammymarie1971 Senior Member Join Date: Sep 2005 Location: British Columbia, Canada Posts: 198	Hi Toni...I too am a stage 4 survivor..I was re diagnosed in mar'04 with liver mets..I had a liver resection in Aug'04 and just had scans done last week liver is still clean!! I only had 1 met to the liver but they prognosis was still grim they said!!! I had 3 rounds of herceptin/taxol first which shrunk the tumor in half than I had surgery and another 3 rounds of herceptin/taxol..Now of course knowing what I know now I would have insisted on at least a year of herceptin...I am back on herceptin now though and am grateful!! Wait until Gina posts she had liver mets in '99 and her liver is also clean!!There is a lot of hope out there. DON'T EVER LET THEM TAKE YOUR HOPE!!!! Crap it ticks me off so much when doctors give a prognosis who are they??GOD? I think not!!!I am so glad there are so many women here who CHOSE not to obey their doctors' prognosis!!!!!Take care Toni..Come to us often..When I read how your husband was overwhelmed with emotion over all the posts I felt my heart swell for him...Our poor husbands!! They want to "fix" us so bad and can't.. it must be really hard for them..big (((hugs))) to your husband and all our husbands!!! Tammy __________________ Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured? Recur: May'05 spine & Hip. New onc treatment in Mexico Feb'06-Mar-06 back to Mexico June/July '06 Currently on herceptin/Zometa/Femara-recently added navelbine Switched to arimidex Nov'06 ovaries removed June '07 ca15-3 in May'06 was 102 ca15-3 summer of '07 holding steady at 23! ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36 Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin. No signifcant changes. Feb'09 Started Xeloda with herceptin..no more hormonals Feb'09-June'09 tumor markers coming down again from 155 to 84 May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.