HER2 Support Group Forums - View Single Post - Dealing with litigation of a misdiagnosis of 17 mos. at 38yo

jessica · 11-28-2005, 10:46 AM

Hi Robin~
Sometimes I think managing the stress of this disease, and all the "stuff" is the hardest part.
So many of us on this board have experienced "disappointments" with our healthcare & providers. In fact, I'm still sitting on the fence about what to do about a situation of negligence w/my current onc. (When I started back on treatment last March, I chose to do q3week Abraxane +q3week Herceptin. At the 3rd infusion, the nurse noticed they'd only been giving me the weekly Herceptin dose-so, 1/3'rd the proper dose.We pulled the written order & "someone" altered the order, crossing out "q3week" & writing in "weekly" instead.So the dosing of the Abraxane + Herceptin was disproportionate. A followup scan showed No Response to the combo & I had to follow up w/an add'l 16 weeks of tx to get to NED).
I've hesitated in pursuing legal action b/c I have had to stay focused on treatment & healing & can't imagine the stress of pursuing litigation! BUT, I do believe something must be done. I'm just waiting til there's more space in my brain to deal with it!
We pay our doctors for the SERVICE they provide. If the SERVICE we receive is inadequate or negligent, & as a result, we are put in harms way, shouldn't we have some recourse? Absolutely!
So Robin, do what you need to do to take care of yourself...massage, hot baths, meditate...being active is always a great stress relief for me-especially being outside, walking at the park w/my dog, going to beach, etc. I also avoid certain people & things that I know will take more energy that I have to give!

Keep us posted & Keep the Faith!

ps-sounds like the burden of the negligence falls in the hands of the lab that read your initial biopsy in 2001 & returned with an incorrect path report?

11-28-2005, 10:46 AM	#9
jessica Senior Member Join Date: Sep 2005 Location: Atlanta Posts: 87	Hi Robin~ Sometimes I think managing the stress of this disease, and all the "stuff" is the hardest part. So many of us on this board have experienced "disappointments" with our healthcare & providers. In fact, I'm still sitting on the fence about what to do about a situation of negligence w/my current onc. (When I started back on treatment last March, I chose to do q3week Abraxane +q3week Herceptin. At the 3rd infusion, the nurse noticed they'd only been giving me the weekly Herceptin dose-so, 1/3'rd the proper dose.We pulled the written order & "someone" altered the order, crossing out "q3week" & writing in "weekly" instead.So the dosing of the Abraxane + Herceptin was disproportionate. A followup scan showed No Response to the combo & I had to follow up w/an add'l 16 weeks of tx to get to NED). I've hesitated in pursuing legal action b/c I have had to stay focused on treatment & healing & can't imagine the stress of pursuing litigation! BUT, I do believe something must be done. I'm just waiting til there's more space in my brain to deal with it! We pay our doctors for the SERVICE they provide. If the SERVICE we receive is inadequate or negligent, & as a result, we are put in harms way, shouldn't we have some recourse? Absolutely! So Robin, do what you need to do to take care of yourself...massage, hot baths, meditate...being active is always a great stress relief for me-especially being outside, walking at the park w/my dog, going to beach, etc. I also avoid certain people & things that I know will take more energy that I have to give! Keep us posted & Keep the Faith! ps-sounds like the burden of the negligence falls in the hands of the lab that read your initial biopsy in 2001 & returned with an incorrect path report?