[bjj]

HI

Can anyone help me this one before I go insane - just seem to be going round in circles?

I am in the UK. HER2 status is not routinely tested for. I was diagnosed in January - Grade 2, negative lymph nodes, tumour 1.5 cm, ER+

I have been pushing and pushing my onc to do HER2 test - she finally relented last month and it was done and came back IHC3+. She said she wouldn't recommend Hercpetin in my case.

I decided to get a second opinion from the hospital where I had my radiotherapy. They are refusing to see me as according to their records I am HER2 negative. Apparently the doctor in charge of my radiotherapy requested the test in February/March and it came back IHC1+. Nobody told me at the time. My oncologist and doctor were not informed either that I was being tested or of the result.

I don't know what to do. I have an HER2 test from Feb/March that says I am IHC1+ and therefore I am HER2 negative and I have a recent test that says I am IHC3+ and therefore I am HER2 positive.

Both places are saying that I don't need the FISH test as in one case it was clearly negative and in another clearly positive.

Has anyone else had this happen to them?

I am at a total loss as to what to do. My inclination is to have a further test done but I am now not sure that I would believe the result whatever it is.

I would be so very grateful for any help.

Thanks