HER2 Support Group Forums - View Single Post - Question for people who had/have brain mets

StephN · 11-15-2005, 11:06 AM

Hi -
My med onc uses CA27-29 and mine has been back in normal range since I got rid of liver and bone mets. Hovers around 20 and below 37 is normal.

We decided to also monitor my CEA as I had word from a friend that some of her tumors did not respond to the CA27-29 and were making CEA. I am glad I did this as this is the marker that was picking up my brain mets, which like JoJo's gave me no symptoms.

During my brain mets epidode my CEA rose slowly over 4 months from 1 up to a little over 6 (less than 5 being normal). Then it shot up to 9 and then 14 and then to a high of about 18+.
The CEA is now .8 - even less than one. The lowest ever. And that feels good to me!

I don't recall any of this info in the book, "The Making of Herceptin."

11-15-2005, 11:06 AM	#7
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	CEA was my clue. Hi - My med onc uses CA27-29 and mine has been back in normal range since I got rid of liver and bone mets. Hovers around 20 and below 37 is normal. We decided to also monitor my CEA as I had word from a friend that some of her tumors did not respond to the CA27-29 and were making CEA. I am glad I did this as this is the marker that was picking up my brain mets, which like JoJo's gave me no symptoms. During my brain mets epidode my CEA rose slowly over 4 months from 1 up to a little over 6 (less than 5 being normal). Then it shot up to 9 and then 14 and then to a high of about 18+. The CEA is now .8 - even less than one. The lowest ever. And that feels good to me! I don't recall any of this info in the book, "The Making of Herceptin."