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Old 11-11-2005, 09:05 AM   #11
kristen
Senior Member
 
Join Date: Sep 2005
Posts: 202
I had the same thing, and the doctors told me no it was NOT the herceptin. But my study nurse told me that another lady who was on the study was recieving Herceptin and she stopped taking it, because she was convinced it was the Herceptin that was causing it. Her pain did stop after taking it. I however just took pain pills and when they stopped giving me those, I just indured it. There was no way I wasn't getting the only thing I had in my arsenal that I could take for HER2. That was just her, I don't know if it was or not. I was also on Carboplatin and Taxotere. I did the neuropathy studies and thank goodness, I had none. I am 2 years NED and with no pain now. It did take a while for it to stop. But if it was the Herceptin and I don't know that it was, I am NED because of it, I would do it all over again.

I know it stinks to be hurting and I have no answers for you, but I did see a great massage therapist who could get it to stop hurting for a while. Hang in there, maybe we will find out more on side effects on this next meeting that is coming up?
__________________
Take care, k
DX: 10/29/03-Stage IIB, 3/12 nodes +, er/pr-,
Grade 3
MRM: 11/07/03
TX: TCH-BRICG Study-6 tx's; 12/15/03
Herceptin; til 12/14/04
Rads: 30 days
BRCA neg
S-Gap: 12/15/04
Oct 05: LAVH
NED
kristen is offline   Reply With Quote