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Hi Karen; Yes, that's the balancing act we all do, "being pro-active without being obsessive". It DOES sound to me as if your concerns were being ignored for too long before your 7/04 dx. You are just going to have to resign yourself to being a pain in the derrierr. To that end, I can share my onc's recommendations for my situation, which has so far not been as complicated as your's:
Annual Brain MRI
Annual PET (from the neck down, to moniter active disease status)
Annual Bone Scan
Routine Chest/Abdominal CT whenever symptoms in that area flare up
Bi-annual ECHO or MUGA for heart function
Have you been on weekly Herceptin since your mets dx?
<3,
Lolly
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