Yes, this article really hit home for me, and I think it also speaks to all the early stage'ers , who often post after finishing treatment for primary, wondering what next?
I have an exceptional oncologist who recently (after this recent, third recurrence) has agreed to also act as my Primary Care Provider. I felt it would really simplify my life and coorelate all my follow-up care. I'm lucky that he's able to do this for me, and if I need specialists they're all right there.
I read an article some time ago written by a woman bc survivor (have forgotten the name
) who talked about "the great divide" between regular people and cancer survivors. How most of them really do live in another world from us, for the most part unable to understand our day to day struggles.
I get the same reaction from people when I'm out socially, "Well, you look GREAT!" And yes, when I'm able to be out and about I do look ok because I make an effort, but they don't see me when I have to stay home because of treatment related side effects. I haven't worked since 2002, because everytime I tried to go back, even part-time, I'd experience another recurrence. So I am "retired", after working since I was 17! It's not how I imagined retirement would be, but I'm still here, still able to have a decent quality of life, and helping to take care of my family when I'm able.
When I'm down and feeling blue I just try to remember that "This Too Shall Pass", and it always does.
<3 Lolly