HER2 Support Group Forums - View Single Post

dberg · 11-01-2005, 11:12 AM

Hello to everyone! I'm not exactly "new" either, but don't post much.

I was dx June '04, age 45, her2+++, er/pr+, 2/13 nodes, "at least" 5cm tumor, and lots of other nasty proliferative stuff. I had a skin sparing mastectomy, followed by a clinical trial of weekly chemo, rads, tamoxifen, and finally "late" herceptin.

I have been coming to this site since Sept '04. I wish I had found it before my surgery, different decisions would have been made. My onc discouraged me from doing the herceptin trial because he thought the control arm was not aggressive enough, which in his defense was true. I agreed to another trial and regretted it, not because it was difficult but because I knew I needed to be getting herceptin. When the herceptin trial data came out at ASCO I was 3 months out of chemo. I was in his face every single day asking when I could start. He dragged his feet because there were no guidelines but I was RELENTLESS. I learned how to do that from my her2 sisters!

My point is that I don't think I would have known enough about her2 if it hadn't been for this site. The resources, motivation and inspiration it provides are why I check it every single day.

11-01-2005, 11:12 AM	#4
dberg Senior Member Join Date: Sep 2005 Posts: 52	Hello to everyone! I'm not exactly "new" either, but don't post much. I was dx June '04, age 45, her2+++, er/pr+, 2/13 nodes, "at least" 5cm tumor, and lots of other nasty proliferative stuff. I had a skin sparing mastectomy, followed by a clinical trial of weekly chemo, rads, tamoxifen, and finally "late" herceptin. I have been coming to this site since Sept '04. I wish I had found it before my surgery, different decisions would have been made. My onc discouraged me from doing the herceptin trial because he thought the control arm was not aggressive enough, which in his defense was true. I agreed to another trial and regretted it, not because it was difficult but because I knew I needed to be getting herceptin. When the herceptin trial data came out at ASCO I was 3 months out of chemo. I was in his face every single day asking when I could start. He dragged his feet because there were no guidelines but I was RELENTLESS. I learned how to do that from my her2 sisters! My point is that I don't think I would have known enough about her2 if it hadn't been for this site. The resources, motivation and inspiration it provides are why I check it every single day.