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pk,
I am three years, two months past my first dx with brain mets. I do have recurrant brain mets at the moment. However, in the past I have had 16 lesions treated with five seperate focalized treatments similar to Gamma Knife, over the course of 21 months.
Getting the head frame on is the 'worst' of it. But with plenty of pain meds plus some anxiety type drug, it is fairly simple to deal with.
I personally had a severe (told it was 'normal') headache after removal of the frame which lasted two hrs. Had very little, if any, after effects. If tumor is closer to surface, some hair loss is possible to area treated. But I only had this happen when I had cerebellum lesions treated with CyberKnife. Hair totally regrown.
I have stayed NED in body this whole time, after having tx for mets to mediastinum/spot on lung/spot on pelvis during the same time frame as first brain mets dx. Without ANY further tx.
Hope our combined stories give you something hopeful to go on..... welcome.
hugs,
patty
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