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StephN · 10-24-2005, 11:02 PM

Dear Sister -
Mets are scary anywhere, but the brain seems to be the worst in our minds. I am not the only other one here on this board to do well with brain mets. There is Lisa who had whole brain radiation this year and is doing well now.

Here is a link to one of my posts just after I had my Gamma Knife this past January.
http://www.her2support.org/vbulletin...ad.php?t=19317

Sorry to hear that you are another of us who had NO symptoms, yet have the met/s to brain. You do have a better chance of beating it when you are NED elsewhere. I had been NED for about 2.5 years when we figure the mets got going in my case. And I am still NED from ears down and nothing more so far in my brain.

Don't understand why you can't write - do you mean with a pen? I know if they feel there is risk of seizure due to where the met/s are you may be restricted from driving. I fortunately was not restricted even though one met was about one inch in diameter.
The steroid decadron was murder on me. REALLY laid me low. Weakened me a lot and I have spent all year building back up after that.

Hope the messages here will be of some comfort. The waiting is the hardest - I had to wait two weeks to get in myself. And the Decadron contributes to the 'antsy' feeling! Have a good engrossing book on hand for the sleepless nights.
Stay with us and we will get through this together!

10-24-2005, 11:02 PM	#5
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Chances are good! Dear Sister - Mets are scary anywhere, but the brain seems to be the worst in our minds. I am not the only other one here on this board to do well with brain mets. There is Lisa who had whole brain radiation this year and is doing well now. Here is a link to one of my posts just after I had my Gamma Knife this past January. http://www.her2support.org/vbulletin...ad.php?t=19317 Sorry to hear that you are another of us who had NO symptoms, yet have the met/s to brain. You do have a better chance of beating it when you are NED elsewhere. I had been NED for about 2.5 years when we figure the mets got going in my case. And I am still NED from ears down and nothing more so far in my brain. Don't understand why you can't write - do you mean with a pen? I know if they feel there is risk of seizure due to where the met/s are you may be restricted from driving. I fortunately was not restricted even though one met was about one inch in diameter. The steroid decadron was murder on me. REALLY laid me low. Weakened me a lot and I have spent all year building back up after that. Hope the messages here will be of some comfort. The waiting is the hardest - I had to wait two weeks to get in myself. And the Decadron contributes to the 'antsy' feeling! Have a good engrossing book on hand for the sleepless nights. Stay with us and we will get through this together!