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Late Herceptin
I'm talking with my onc about this too. I'm still NED as far as anybody knows, with lumpectomy 2002 followed by CAF x 6 and rads and hormonal treatment. I am considered to have a "very good prognosis" without any other treatment. I kept my port in when I learned I could not be part of the clinical trial as a "node-negative, under-2-cm", hoping that eventually I might be able to benefit WITHOUT having to demonstrate mets/recurrence first.
When you all talk about Herceptin I am wondering whether some of you are doing:
1. A brief course of Herceptin
2. A year of Herceptin
3. Indefinitely on Herceptin
4. Combining it with a taxane, for how long?
Given the cost of Herceptin and the number of us who are wallering around in this situation, I think the oncologists who decided that people in our situation couldn't have Herceptin as part of the clinical trial were not as bright as the average bc survivor....
It may sound foolish, but I also debate with myself at times the issue of having such an expensive drug, and whether that means essentially that others end up going without it in the "big picture".
Given that in the U.S. for those who are diagnosed with my exact same diagnosis today (even those whose prognosis is as good as mine) it would be considered standard treatment, it would seem that it probably makes sense to have it whether or not the wizards of oncology can say with any certainty that it helps.
Comments welcome.
AlaskaAngel
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