Hi, I forgot to mention that I am a memeber of a Breast Cancer Support Group, about 4 years now, and I must say I think they have lost the plot, I say I am a member but I haven't been to a meeting since 2003, that was when somehow I got roped into the position of organising the entertainment for our very first Local "Mini Field of Women" I ended up in hospital with heart failure in three valves in the middle of it all but I still managed to delegage. It started because I mentioned my brother in law was involved in sound production and lighting as a profession and he might know entertainers. I attended for about an hour on the day but ended up back in hospital the next day. I was contacted the following August to tell me they hadn't done anymore for the upcoming event because they quote "didn't want to take my baby away from me", like any mother with a screaming child, please take it from me. So I told them to contact everyone who helped the previous year and take it from there. there was no budget the first year at all, so just about everything was donated. The following year went well and they had funds for that, this year it got cancelled the day before due to heavy rain. You might think what is my problem, the problem was that the whole group was about fund raising, each second meeting there would be a speaker, but lets face it what has Scrap Booking go to do with BC support, then to top it off, they held a garage sale to raise money for the children's hospital, where I ask is the support for women. I told them they should consider giving vouchers to ladies to spend in a lingerie shop on mastectomy bras, they are not cheap, anything that might be of some support and I don't mean support bras, it just came out that way, needless to say with all of my treatments I usually can't go anyway. I get the newsletters and I have bumped into a few ladies who have also dropped off the radar and they agree, it is brilliant they can raise money and give some of it to Cancer research, and that doesn't necessarily mean BC either, so there must be some good groups out there, but not in my area. Like I said before this has been the best therapy for me, with all of the friends, love and support brought together by Christine and Jo, what more
can we ask for. The other thing I realised at the support group was that hardly anyone had much treatment and only basic surgery and no mets, I was the freak with always something happening, and apart from being told if you need anything let us know and an occasional e-mail telling me of great things in the pipeline like "Herceptin" please, they haven't heard of one half of the treatments I have had, so for me this is it.
Love & Hugs Lyn
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