|
Just to be sure...
Linda,
This her-2 stuff is really sneaky...if I were you...just to be on the double safe side...I would also INSIST that my blood levels for CA 27/29 and Serum Her-2 be measured for several months just in case.
Not to scare you, but I have read data (posted somewhere here on this site back in August I think) and witnessed several cases where a girl could have her-2 in the blood and not have it show up on the tumor...it is not always as clear cut as it seems...fyi. According to the article, you can also have it on the tumor and never have it show up in the blood at all...and then, these are the 15 to 20 percent of folks who, by default, can't really use their tumor markers to follow the disease progression and regression..fyi.
Of course, if you are absolutely positive that there is no elevated serum her-2 levels circulating in your blood and your CA 27/29 is 10 or less, then, odds are good that you do not have her-2 at the moment..., but if you stay off the herceptin and within 6 to 8 months start getting sick again...I would revisit the whole issue as odds would be likely you are still her-2 plus...and get back on the Herceptin as fast as possible as her-2 is not something you can be lax about...and I should know...as for years..early on, I tried to be lax about it and it nearly killed me..uh... 7 times...sighhhh. So I am just speaking from my heart on this matter.
That is just my take on it,
Gina
|