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Just curious????
Hi, Sue,
First, sorry to learn about this news..but stay strong and positive...look at HOW many girls on this site have come through so much. Also, I just finished working with a woman with even glioblastoma multiforme and she is doing amazingly well...the technology has improved so much and is getting better every day. The lady with GM that I mentioned was treated at Duke University and has nothing but the most positive things to say about her experience. I am sure you can handle whatever comes your way.
Now, my question to you is simply this: At any time during your previous treatments did you ever take Cisplatin or carboplatin??? The reason I ask is just anecdotal and there is really NO HARD core evidence to support it, but I have noticed a slightly higher percentage of brain mets involvement in her-2 patients who have at some point been treated with either of these two drugs--either at the primary tumor stage or during mets??? Like I said, it would be interesting to know if you ever took either one, and if so, there might be something safe we could try to give you a slight edge....
Take care and best of luck, Gina
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