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IBC and taking suppliments
Hi Betty,
I was diagnosed with ibc in 8/2004 in my left breast. This was my second primary. I had regular breast cancer in my right. Both were Her2++++
I am taking the following suppliments (when I can remember)
Flax oil - to get the oleic acid
Beta Glucan- studies show it works synergisitically with Herceptin
Broccoli sprouts extract- it contains sulforaphane which studies show act like a mild taxane. You can get this, however, by eating broccoli, cauliflower, brussel sprouts or cabbage.
COQ10(sp?)- I am still taking Herceptin and it helps heart function
I had neoadjuvant Herceptin/taxotere and12 weeks of Herceptin/Navelbine after my mrm.
I have not had any mets to date. Currently I am on Herceptin alone. My onc and I decided that I will stay on it untill the 2 year hera trial data is released at ASCO
Km
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8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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