I really feel for you... the craniotomy is NO fun business!! :-( Actually, scary & sh@^#y, too. May I ask if you had ever had radiation seeds implanted during your craniotomies?
The success result for gamma knife is actually 95%. You & I just so happen to fall in the unlucky 5% group. I asked my rad onc last year why such tumors grow back in the same spot(s).... he said that sometimes micromets surrounding the original tumor may have escaped the gamma knife. Because of this reason, they recommended I go in for a craniotomy.
Sue, it sounds to me as if you are needing to express your feelings with somebody. I really hope that you get a chance to do it so that you would be able to make a decision that you could live with.
It is a horrible feeling to feel alone. You did the right thing, by coming to us here on the boards. Come to us ANYTIME! We are right here with you.
You are welcome to drop me a line anytime: acrobaticfan@yahoo.com
You are in my thoughts & prayers.
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Blessings & Peace,
~jojo~
1st Dx: May '03 at age 35
Stage 3b
6cm IDC tumor
17/18 + nodes
Neoadjuvant: 4x A/C dose dense; 12x weekly Taxol & weekly Herceptin
Left Mastectomy: Nov '03
27x Rads
Stage 4 since June '04
Still on maintenance Herceptin since the very beginning
Currently on Abraxane (3 weeks / 1 week off)
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