Hi, I also have IBC. Dx6/03, had 3 doses EC, mastectomy and then another dose of EC. Then 27 radiations and then another 4 cycles of Taxol. I had a 7cm tumour and 12 out of 19 lymph nodes involved. Recurrence in Jan05, skin and lymph nodes with a pleural effusion (don't know whether there was any cancer cells involved or not) but good old Herceptin eliminated the effusion and reduced the Dx to NED. IBCers are often strongly positive Her2 because of the aggressive nature of the beast. Anyway, so far so good. Life is good.
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