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Betty I was diagnosed with IBC March 2001. I am doing well with no organ or bone involvement. I do have skin mets on the chest wall but this is a chest wall and lymphathic disease and treated as a chronic illness. Meaning I am in and out of chemo. I will be happy to answer any questions you may have. I am always looking for IBC'ers as there are so few of us. Please feel free to e-mail me personally if you like. There are a few on the board here and you may hear from them as well. Hugs, Sandy
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