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Hi AnneMarie
I had stereotactic rads to a brain met a year and a half ago. About 6 months ago, this spot started changing shape and enhancing more. This has continued for 6 months now. My case was presented at tumor board, I saw 3 outside neurosurgeons and 2 rad oncs. I had a PET scan that was negative but have been told PET in breast cancer brain mets are not reliable. I had a test called MR spectroscopy supposedly very sensitive and it came out probably not tumor but they always qualify it and say they can't be sure.

If it were tumor, I am told I could not have stereotactic rads again but would have to have surgery though one neurosurgeon disagrees with this and would reradiate the spot if he could clean it out well. However, all the neurosurgeons agreed that they would not operate and would continue to watch because I have no symptoms and it is still in the field of radiation and might be radiation damage.

I don't know if this helps. It was driving me nuts for months but I finally stopped worrying and figured if 6 neurosurgeons couldn't figure out what to do, then I better not do anything right now and just watch it closely.

I am also told that radiation damage usually starts about a year out and declares itself in about 6-10 months.

Best of luck,
Rosie