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Kristen...
I only have a short time before getting set to leave today.
What Steph said: I agree with. If this tumor has 'tentacles' it sounds more like a type of primary brain tumor than metastatic tumor. Also as to the size more likely at 23mm. Not cm.
If indeed primary and malignant, treatment with Temodar may in fact be a good idea...
Focalized rads with something like this is difficult because of the "tentacle" aspect.
If operable to a degree, with added Temodar and a few sessions of smaller dose focalized rads to areas that were not able to be removed may also be an option.
So many of us metsters have had experience with response to a chemo with progression after a few to 6mos. or a yr. The cancer becomes 'resistant' to that particular chemo. it learns to not respond anymore, so to speak. That is what I meant by not knowing how long this would be effective for me.
Leaky bbb is a good thing when considering treating with chemo.
The tx combo I am on was 'invented' by my onc with my support. There is NO current standard to go by.
I continue with the Xeloda at 2000mg in two divided doses on the second week. ( so, I take 1000mg 2x's a day). Then I have two weeks off before beginning again.
Don't know how helpful the MRs would be with what is seen at this point....with the wrapping around, tentacle stuff. Sounds like that is something the docs could determine from what they can see...
As to the Decadron....that could be reduced to effective amounts. Whatever her symptoms are from the brain tumor, the dec is supposed to control them. And yes, DEFINITELY take something to help with sleep. This drug is my LEAST favorite... I should say drug from hell. yet it does it's appointed job so well...
That's all I can think of, have time for at the moment. Hope it makes sense. hope others have more ideas. But, whatever the future brings, your support and love will be the most helpful to your friend.
hugs,
pattyz xoxo
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