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I have IBC and I did great on navelbine and herceptin. I had ibc in right breast and had an mrm after much chemo. The results were great and everyone was estatic. Two weeks after 33 rads I had ibc in my left breast.
I was on ellence and taxol, ended up in hospital with neutapenia fever, chemo changed to herceptin with navelbine. Cannot remember how many treatments but it was every week probably 4 cycles , had an mri and pet which was ned. Had my mrm which showed a .5mm tumor, nothing, no positive lymph nodes. Went back on navelbine/herceptin for another 4 cycles
(I think) and will be on herceptin for a year. I am now doing 33 rads again. I have not had a break from this disease and I am mentally and emotionally exhaused from this battle. I am also grateful to be ned and pray that I will remain so. I pray for you that this will be your majic bullet and you will have the same results as me. I also had very few side effects from the chemo except for low blood counts, mainly white and I got procrit for red cells. Ellen from Long Island
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