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tammymarie1971 · 09-28-2005, 09:01 AM

It used to be easier to get my mind on other things and to be more optismistic regaring my health. However once you deal with mets I guess it just is never far from your thoughts. Liver mets '04 bone mets '05. I think that so far the liver is good I did chemo and they did a liver resection. My new onc doesn't understand why they didn't keep me on herceptin longer that the three rounds I had before surgery and three rounds after surgery. Anyway when checking on the how the liver was doing this spring the ct scan picked up something on my spine which sent me for a bone scan, ta--da....bone mets!!!

Anyway I guess I've just lost my innocent way of thinking "oh ...it's probably nothing"..will not likely cross my thoughts too quickly anymore.

Can anyone answer my question regarding how her2+ I may be...if after one round of herceptin the tumor markers
go from 74 to 39 is this a good indication of strong her2+?

I feel like I just spend my days trying to keep my emotins from spiraling out of control!!! I need to have some positive re-enforcement thoughts to turn the direction of my thought patterns...Can anyone help with this!!!!!!
Tammy.

09-28-2005, 09:01 AM	#6
tammymarie1971 Senior Member Join Date: Sep 2005 Location: British Columbia, Canada Posts: 198	It used to be easier It used to be easier to get my mind on other things and to be more optismistic regaring my health. However once you deal with mets I guess it just is never far from your thoughts. Liver mets '04 bone mets '05. I think that so far the liver is good I did chemo and they did a liver resection. My new onc doesn't understand why they didn't keep me on herceptin longer that the three rounds I had before surgery and three rounds after surgery. Anyway when checking on the how the liver was doing this spring the ct scan picked up something on my spine which sent me for a bone scan, ta--da....bone mets!!! Anyway I guess I've just lost my innocent way of thinking "oh ...it's probably nothing"..will not likely cross my thoughts too quickly anymore. Can anyone answer my question regarding how her2+ I may be...if after one round of herceptin the tumor markers go from 74 to 39 is this a good indication of strong her2+? I feel like I just spend my days trying to keep my emotins from spiraling out of control!!! I need to have some positive re-enforcement thoughts to turn the direction of my thought patterns...Can anyone help with this!!!!!! Tammy. __________________ Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured? Recur: May'05 spine & Hip. New onc treatment in Mexico Feb'06-Mar-06 back to Mexico June/July '06 Currently on herceptin/Zometa/Femara-recently added navelbine Switched to arimidex Nov'06 ovaries removed June '07 ca15-3 in May'06 was 102 ca15-3 summer of '07 holding steady at 23! ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36 Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin. No signifcant changes. Feb'09 Started Xeloda with herceptin..no more hormonals Feb'09-June'09 tumor markers coming down again from 155 to 84 May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.