Lyn

Thanks Sandy, we must be doing something right, I think we are just about the old timers on this board and hopefully the ones that dropped off did so because they have finished treatments that have been tried and true and are all well, it would be so nice to be able to find out the tally on those success stories. We don't mind if they drop off and get on with their lives, Geee, it would be nice to be in that category, but I think this is our vocation in life, to lead by example and spare our sisters from unnecessary toxins and side effects if we can. I heard my onc tell an associate, definately new to his clinic, Oh Lyn, she is too hard, that was while she was walking him back to see me, I chuckled when she called my name, I said I think you will need to get Boris, she said of course she was the go between, when I sat down she said "so where is you pain" where that came from I have no idea, I streatched back in the chair grinned at her and said "well where do you want me to start" she had no idea of why I was there or even what was wrong with me, of course she could be forgiven for that, I just rattled it off, she was shuffling paper, scribbling notes, she said you have a connective tissue disorder, I said that's right, she was stumped as to what she was doing with me and through in the CTD as if she knew something about it, nup, she went and got Boris, so when he got in the room, she was witnessing a different language, she was chineses/english, Australians speak very very fast, Boris is Burmease but been he has been here since he was 7, one of the countries top oncs, so he is Aussie as far as I am concerned, bottom line was I couldn't have Abraxane, you can in America, we have to wait another 5 years to see if we get the same result, stupid government, any country that has a prime minister that looks like "Mr Sheen" should know he is only selling his own product, self preservation, interestingly engough his wife has Breast Cancer, I have offered to trial the new drugs for her in case she needs them in the future (Mr Sheen is a furniture polish with a little man with big eyebrows and glasses on the can, could easily have been charactured from him) Boris loved the combo of Xeloda and Cyclophospamide, I had faxed him those details as back up, he had all and I mean all of my paper work faxes in his bag, so no doubt his other patients will be getting it. In my complaint to local memember, I had my gripes about everything, there is a point to this story at the end, my now 22 year old son to this day cannot read or write, he graduated his senior year with a pass in English higher than his brother who is very intelligent, that was a joke, he had to keep bringing his assignments home with the corrections made and he had to re do it, or should I say I had to, anyway the then deputy principal, a lovely lady did not give up on him, she schedules a course with all hands on, seamanship, agriculture, manual arts and a bit of English and Maths thrown in for life skills, as soon as he left school he got a traineeship appointed by the local council in Civil construction, he did that for 12 months and during the break from that about 2 weeks, he got a job with a large road maintenance and he has been there ever since, still can't read and write but he gets Aus $53 a year equiv to you $28, anyway turns out that the lady that made the difference to his life, and maybe a few more, died of Breast Cancer last month, what a difference a survivor makes, obviously didn't get the treatment here in Australia that would have kept this great lady alive, not a mention in the local paper about her passing, my daughter who attends a different school found out from a friend well after she had succomb. The teachers told me when he was growing up not to expect much from him, because of his disability in literacy and numeracy the government put him on a pension as soon as he left school, thankfully he refused to fit that category and because of her and his determination he will make something of himself, one of the reasons I can't give him, he still lives at home, works dark to dark, no girlfriend so between me and his sister, 15 we have to look after his interests, so I told the politician he was just one of the reasons I had to continue to fight, he got 10 pages from me, I told him to get a copy before he read further, he has received it, his secretary said he will reply, where he will start is going to be interesting, I will keep you all posted. Keep on keeping on, you also are a true Energiser Bunny, (that is the battery icon, for those that don't know, a pink bunny, good choice of colour)

Love & Hugs Lyn