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Patti and Steph,
You have both been a fountain of information; thank you for sharing your experiences. It seems like you have both been dealing with brain mets for eons...how long has it been?
I have another question; my onc encourages me to stay tuned into abnormal symptoms I am having; stating that mets won't typically show in a scan until we feel symptoms. He also says that women who follow their tumor markers and get scanned when the go up; vs women who get scanned only when they feel symptoms; have the same prognosis. This leads me to believe that the focused scans and follow up treatments, should be done when I feel symptoms. Does this philosophy hold true for brain mets as well?
And dear Chartermom02, it sounds like you are worried sick!?! Have you had any scans or indication that you have spread past a stage 1? If it is not in your nodes, it is not likely to have spread to your brain...I would wait and see what this latest round of scans turns up.
Love Kim from CT
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