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tammymarie1971 · 09-24-2005, 09:15 AM

Hi Sassy, I can totally understand the fear of bone mets, However you are going to have to decide now how you are going to handle your fears from here on out.... I have gone through exactly the same fears and they will RULE you if you let them!!!!! So make a deal with yourself that if a pain stays longer than ..say...2 weeks or whatever you decide... then and only then will you start to worry enough to go get it checked out. I don't mean to undermine your fears I know they are REAL but I just felt that as someone who has been there a few times!! that I wanted to pass on what I've learned to someone just starting this journey...and a journey it will be. Fear will always try to be your constant travel companion, you have the power to kick it in the ass!!
Anyway, that enough ranting..
As for the pain your experiencing now it is quite possible to be nerves regenerating form your surgery or a side effect from the chemo!!
Take care Sassy!
Tammy

09-24-2005, 09:15 AM	#2
tammymarie1971 Senior Member Join Date: Sep 2005 Location: British Columbia, Canada Posts: 198	Worry is a demon...!!!!! Hi Sassy, I can totally understand the fear of bone mets, However you are going to have to decide now how you are going to handle your fears from here on out.... I have gone through exactly the same fears and they will RULE you if you let them!!!!! So make a deal with yourself that if a pain stays longer than ..say...2 weeks or whatever you decide... then and only then will you start to worry enough to go get it checked out. I don't mean to undermine your fears I know they are REAL but I just felt that as someone who has been there a few times!! that I wanted to pass on what I've learned to someone just starting this journey...and a journey it will be. Fear will always try to be your constant travel companion, you have the power to kick it in the ass!! Anyway, that enough ranting.. As for the pain your experiencing now it is quite possible to be nerves regenerating form your surgery or a side effect from the chemo!! Take care Sassy! Tammy __________________ Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured? Recur: May'05 spine & Hip. New onc treatment in Mexico Feb'06-Mar-06 back to Mexico June/July '06 Currently on herceptin/Zometa/Femara-recently added navelbine Switched to arimidex Nov'06 ovaries removed June '07 ca15-3 in May'06 was 102 ca15-3 summer of '07 holding steady at 23! ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36 Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin. No signifcant changes. Feb'09 Started Xeloda with herceptin..no more hormonals Feb'09-June'09 tumor markers coming down again from 155 to 84 May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.