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Oh PattyZ,
This has been so helpful to me, you are very clear talking about your symptoms or lack thereof. There clearly is no set type of symptom; nor is it clear to me if brain mets could progress before a reoccurance of lung mets. I wonder if brain mets grows quickly or slowly. It seems like more and more of us herceptin girls are getting brain mets. You say you are NED in body 3 years out from your doses of Navelbine/Herceptin...was that your first line of treatment? Does "NED in body" mean that within those 3 years you do not count your brain mets?
You are incredible, thank you for sharing so much. I am curious to know how mets to the brain unfolds; I am beginning to see it does not unfold "typically"...
Love Kim from CT
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