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Hi,
NED is no evidence of Disease and the other, I don't have a clue...as to liver mets...well, yes, I guess you could say I have uh ummm. "experience" first being diagnosed with them in April of 1999...I have watched them come and watched them go, watched them increase, watched them decrease, checked out my ct scans and measured them with ruler for myself..ha ha, yes, I know them well.
In my experience, using herceptin alone coupled with a healthy diet and good supplement plan wipes them back every time...sad but true, I even have COLOR pictures of my liver with the white milky/lacey looking surface lesions on them. Liver spots don't worry me too much any more and seem to be par for the course if you are her2+++. If you know what your tumor markers are (especially CA 27/29 and the serum her-2), you can wipe the markers way down and keep the liver lesions from coming back by being certain that you take enough herceptin on a frequent enough basis to stay "NED"
I would DEFINITELY NOT do any SURGERY to the liver for spots..no way.
Have you tried Co-Q10 for lungs in conjunction with herceptin. I do not have lung mets, but I help many people with cancer, especially ER-PR-her-2+++, and I had this one truly remarkable woman who despite having colon cancer mets to the liver, lungs, bones and pancreas, lived an amazing high quality of life for 2 years after DX using a basic supplemental regiment that included moderately high doses of pure magnesium, Vitamin A&D in fish oil, zinc, a multi, olive leaf, and Co-Q10. Despite a CT scan that showed more than 90 percent of her lungs and liver covered in mets, she walked outside every day for 30 minutes and in general, lived her life till she was given an accidental overdose of meds in the hospital for something else and died. She did not die from the cancer and she felt the co-Q10 really helped keep her breathing well, despite the lung mets--she never even required any assistance oxygen. This is just anecdotal, but I watched her live for such an incredible time, unbothered by spots...she was also not from this culture and did not seem to share the "fear" of spots that we have embedded in our brains. At one point, I had 12 lesions the size of nickles, quarters, and dimes in my liver and only one of them bothered me...the one that encroached on the small space inbetween the duodenum and the small intestine...which of course, was serious as had I not gotten to the herceptin and as my case was inoperable, I would have most likely died due to obstruction or hunger as when I would eat it would take HOURS for my food to drip through the tiny opening..like a clogged drain. This is the main concern with tumors and lesions in critical locations, but as long as the lesions aren't doing too much obstruction, I would not have surgery and would explore uses of Herceptin dosing strategies and dietary and supplemental intervention only. I have not had any chemo since 1998...just herceptin off and on since 1999 and am now on regular herceptin every 6 weeks. Fyi, Gina
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