HER2 Support Group Forums - View Single Post - Is anybody here stage IV & not taking Herceptin?

09-13-2005, 09:59 AM

Hi Ally,

You are very smart to be asking around about having Herceptin as Rx.

I am just a little confused bo your cancer history. Did you mean to say that your original diagnosis was at Feb '04 with bone mets, and now you are in remission, and then your onc doesn't want to give to you until if/when you get another recurrence??

For mets ladies, there is no official rulebook to declare that they have to take Herceptin for a certain number of years. In fact, most of us stage 4 ladies here in the U.S. are on maintenance Herceptin indefinitely.

Of course, it is a different story for early-stage women with NED... usually 1 or 2 years in length on Herceptin (with or without chemo).

Good luck!

09-13-2005, 09:59 AM	#2
jojo Guest Posts: n/a	Hi Ally, You are very smart to be asking around about having Herceptin as Rx. I am just a little confused bo your cancer history. Did you mean to say that your original diagnosis was at Feb '04 with bone mets, and now you are in remission, and then your onc doesn't want to give to you until if/when you get another recurrence?? For mets ladies, there is no official rulebook to declare that they have to take Herceptin for a certain number of years. In fact, most of us stage 4 ladies here in the U.S. are on maintenance Herceptin indefinitely. Of course, it is a different story for early-stage women with NED... usually 1 or 2 years in length on Herceptin (with or without chemo). Good luck!