HER2 Support Group Forums - View Single Post - YOUR INPUT NEEDED for breast cancer article

09-10-2005, 04:42 AM

Gee you wouldn't want me to get started, I am in Australia and I have a GIANT beef at the moment, with all of the knowledge and info I have sucked out of our site and the internet, we still can't get American FDA approved drugs here until they have undergone a further trial for up to 5 years, I have been lucky on occsion that my onc tries his best to bend some of the criteria, but when he can't even get his hands on the drugs it is soooo frustrating. Does our government think that the rest of the world are Aliens and that their drugs may be harmfull to us, it was only that our Prime Minister John Howard\s wife got BC that Herceptin was made available to the Australian public, I just hope she needs Abraxen real soon. Some of the combinations we have come up with have been used for other big C patients under the care of my Onc. I have been doing this non stop since 1998, I think I may have had a remission of about 4 months back in 1998 but since then, 10 different chemo drugs, over 100 rads and 2 hormone drugs, and now I am looking at a new primary BC in my remaining breast, which seems less agressive and down graded to HER 1+, 2+ previously strongly HER3+ with an ugly fast growing agressive invasive cancer, definately a chronic illness, I put it in the category of diabetes, I was schedule for termination in about the year 2000 or 2003, but I had a bigger plan in the scheme of things. No I am afraid if I did get started you would be publishing a novel and not just an article.

Love & Hugs Lyn.

09-10-2005, 04:42 AM	#4
Lyn Guest Posts: n/a	Gee you wouldn't want me to get started, I am in Australia and I have a GIANT beef at the moment, with all of the knowledge and info I have sucked out of our site and the internet, we still can't get American FDA approved drugs here until they have undergone a further trial for up to 5 years, I have been lucky on occsion that my onc tries his best to bend some of the criteria, but when he can't even get his hands on the drugs it is soooo frustrating. Does our government think that the rest of the world are Aliens and that their drugs may be harmfull to us, it was only that our Prime Minister John Howard\s wife got BC that Herceptin was made available to the Australian public, I just hope she needs Abraxen real soon. Some of the combinations we have come up with have been used for other big C patients under the care of my Onc. I have been doing this non stop since 1998, I think I may have had a remission of about 4 months back in 1998 but since then, 10 different chemo drugs, over 100 rads and 2 hormone drugs, and now I am looking at a new primary BC in my remaining breast, which seems less agressive and down graded to HER 1+, 2+ previously strongly HER3+ with an ugly fast growing agressive invasive cancer, definately a chronic illness, I put it in the category of diabetes, I was schedule for termination in about the year 2000 or 2003, but I had a bigger plan in the scheme of things. No I am afraid if I did get started you would be publishing a novel and not just an article. Love & Hugs Lyn.