Dear Hope,
Dear sweet fighter angel, you go girl and what a role model you are for us, fighting like hell...
And to have such a daughter who is so supportive; what a gift....
dear angel, we are not miracle workers but as you say, we share what we can...
my suggestion is that you consider speaking with the head of the Seattle trials, Dr. Disis or one of her research doctors, Dr. Devon Webster...they may not have a study for you but they certainly would have some advice...this is Dr. Devons email address:
devonweb@u.washington.edu .. it can't hurt to ask.
I think Kim from CA recently dealt with the complicatins of brain mets; you may want to try and contact her.
Also, I have had luck eating a vegan diet with lots of green growing sprouts and wheatgrass juice...cut out sugar and cut back carbs; I just feel like controlling my diet gives me one more little bit of control over this cancer and as a side benefit; I feel great.
Hold tight to your name; Godspeed...
Love Kim from CT