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Todays appt results:
iMRT is not feasible in this situation. The only possible tx for my 10 new(er) brain mets is now WBR in an extended schedule a minimum of 15 sessions or the chemo combination I'm now on of Temodar/Xeloda.
The chance of response to the WBR is average, but the risks of permanent damage to brain is quite a bit higher given that I've had so much prior rads to brain. It could leave me not recognizing anyone, or with paralysis and many inbetween things...
So, unless I become more symptomatic (more than the 24/7 dizziness), I will continue with a second course of chemo. At the end of Sept. I'll have another MRI to see if there has been any change. At that point, depending on the results of scan, I will either stay on chemo, risk WBR, or ...not. Let progression continue until I succumb.
When asked, this doc did not forsee my end in a 'locked in syndrome', that I would be aware of atleast. But I still hate that since it could be protracted. And I really don't want to linger endlessly either.
I can wait on hospice until my symptoms get worse either on their own or as a result of WBR.
My hope (ofcourse!) is that my lesions will respond to the Temoda/Xeloda and that I can share that as another option for those of us with brain mets, since we have so few.
If I do go with the WBR at some point, I will do my best to have it in conjunction with RSR-13, but honestly I forgot to ask if it's available yet outside of trials.
Thanks to all of you who've sent good thoughts and prayers my way. ALWAYS appreciated.
hugs,
pattyz xoxox
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