HER2 Support Group Forums - View Single Post

StephN · 08-21-2005, 12:00 PM

Eccles wrote:
"I did not devastate my body with other treatments following bilateral mastectomy so I have had good quality of life between original dx of HER2 neu BC - July 2003). Seven months into Dexamethasone (4mg/day) I am in a wheelchair which makes life easier. It is only recently that the cancer has spread to the bones and obviously the longer I survive the tumour, the more opportunity there is to experience other 'outcroppings' "

I know you have posted from time to time, but I do not have a good "fix" on your story. First of all I am curious if your first met was to your brain? And were you able to have ANY treatment for it besides an operation?
Secondly, I am wondering if you have simply decided that you do not want any intervention even if it is available and would give you a chance to live longer?
As for 7 months on Dex, that is quite debilitating even at a lower dose. I took that drug earlier this year for my brain mets before and following Gamma Knife, and have as hard a recovery as if I had been on high doses chemo (which I have in the past).

Also, can you post a link to the brain sites that you have found helpful.
Thanks a lot!

08-21-2005, 12:00 PM	#9
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Eccles wrote: "I did not devastate my body with other treatments following bilateral mastectomy so I have had good quality of life between original dx of HER2 neu BC - July 2003). Seven months into Dexamethasone (4mg/day) I am in a wheelchair which makes life easier. It is only recently that the cancer has spread to the bones and obviously the longer I survive the tumour, the more opportunity there is to experience other 'outcroppings' " I know you have posted from time to time, but I do not have a good "fix" on your story. First of all I am curious if your first met was to your brain? And were you able to have ANY treatment for it besides an operation? Secondly, I am wondering if you have simply decided that you do not want any intervention even if it is available and would give you a chance to live longer? As for 7 months on Dex, that is quite debilitating even at a lower dose. I took that drug earlier this year for my brain mets before and following Gamma Knife, and have as hard a recovery as if I had been on high doses chemo (which I have in the past). Also, can you post a link to the brain sites that you have found helpful. Thanks a lot!