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08-20-2005, 10:39 PM

Patty,
As another with brain tumours (mine inoperable in the posterior fossa region) I can imagine how you might consider not being able to, or not wanting to post anymore but let me ask you something: did you, like me, experience frustration looking for others on the various forums (should be 'fora' I think, but do we care about the grammar?) with whom to identify?

Eventually I had to go looking at primary brain tumour sites rather than BC mets sites just because there was almost noone in our boat posting with whom to identify. I would be all the poorer if you did not continue to post. You may feel that it is game over and I would not expect you to make promises but think of your 'sisters' out here who need to know that you are still climbing the rocky path. There can be a big difference between giving up and acceptance and it has to do with the quality of the attitude which goes along with it. You are needed here by others. All the subtle encouragement you may get to slowly sink out of site (sight :) is not in anyone's best interests.

I did not devastate my body with other treatments following bilateral mastectomy so I have had good quality of life between original dx of HER2 neu BC - July 2003). Seven months into Dexamethasone (4mg/day) I am in a wheelchair which makes life easier. It is only recently that the cancer has spread to the bones and obviously the longer I survive the tumour, the more opportunity there is to experience other 'outcroppings'. At that level it is all guesswork and I can do that for myself. I hope that I will be posting somewhere right up to the very last minute if it can help even one person. Eccles.

08-20-2005, 10:39 PM	#8
Eccles Guest Posts: n/a	Patty, As another with brain tumours (mine inoperable in the posterior fossa region) I can imagine how you might consider not being able to, or not wanting to post anymore but let me ask you something: did you, like me, experience frustration looking for others on the various forums (should be 'fora' I think, but do we care about the grammar?) with whom to identify? Eventually I had to go looking at primary brain tumour sites rather than BC mets sites just because there was almost noone in our boat posting with whom to identify. I would be all the poorer if you did not continue to post. You may feel that it is game over and I would not expect you to make promises but think of your 'sisters' out here who need to know that you are still climbing the rocky path. There can be a big difference between giving up and acceptance and it has to do with the quality of the attitude which goes along with it. You are needed here by others. All the subtle encouragement you may get to slowly sink out of site (sight :) is not in anyone's best interests. I did not devastate my body with other treatments following bilateral mastectomy so I have had good quality of life between original dx of HER2 neu BC - July 2003). Seven months into Dexamethasone (4mg/day) I am in a wheelchair which makes life easier. It is only recently that the cancer has spread to the bones and obviously the longer I survive the tumour, the more opportunity there is to experience other 'outcroppings'. At that level it is all guesswork and I can do that for myself. I hope that I will be posting somewhere right up to the very last minute if it can help even one person. Eccles.