Thread: Project Lead
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Old 08-20-2005, 08:54 PM   #2
Gina
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Thanks Joe,

Actually, I live only a few minutes from downtown DC so I will download the application and try to arrange my work schedule to attend. Sounds right up my alley.

Sorry, that as a new comer I have somewhat stormed the site with lengthly and detailed posts but I have a long and horrid past with this disease and have spent years researching just for myself and am now at a point where I feel I have a least a few solid and well-researched tid bits to GIVE back. Mostly they are only educated opinions, but still I hope they will be of some help.

I was shocked and appalled to learn that so many folks on this site are apparently ignorant of their own tumor markers...and granted, I know there are patches of her-2 folks who will not have demonstable markers, the bulk of us do have and we need to know them. Is there any way to get the word out to the oncologists to at least start trying to get the patients their markers so they both can use them in a bio-feedback setting to better adjust Herceptin dosage and avoid possible cardiac damage or worse??? As I say everywhere, in this day and age, where her-2 is concerned, there is no reason to guess if you have it or guess how badly you have it. Of course, there is still always a place for scans and other tests, but why are some oncology offices "up" on the markers while others lag pitifully behind???

Thanks again, if I attend the Nov. conference will surely "share" what I learn...smile.

Gina
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