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Old 08-13-2005, 11:42 PM   #5
Gina
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Mike, Wow!! What an interesting case. I have been around the BC world for about 8 years and have not heard of anything exactly like it. I am ER-/PR- her-2 3+ and have no hormonal involvement so the bulk of my research has not focused on the hormonal components. So, most likely, I won't be much help. The reason I am responding, however, is I was VERY interested in your mention of MRSA. I do a lot of research with her-2 mediated cancers in relation to bacteriology. Just curious, did she get this particular STAPH infection from a surgery, an implant, or from a PORT??? Also, do any of her cancer episodes coincide or follow various bacterial infections to the best of your knowledge? Was she ever an oncology nurse?? (The one case I saw somewhat like this, ironically, happened to my oncology nurse about 6 years ago, she didn't make it...sighhhh, but that was before Herceptin was really accessible...) When reviewing your wife's bloodwork do you again and again note high Grans/low lymphs/ low platelets and high liver enzymes such as GGT, ALT, etc, or low bile???? Is your wife's bloodtype A negative??? Are you aware of the research going on which is linking her-2 elements in hormonal NEGATIVE cases to a root bacterial element? Again, I am only familar with it as it relates more specifically to the ER-/PR- her-2 mediated tumors, but I would be interested if you have any comments as it seems you are very knowledgeable about your wife's case. She is very lucky. I have been a single parent going through all of this alone with no family nearby for 8 years, raising a small son. My heart goes out to your both. Best of luck, Gina
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