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I was told finding mets early does not increase survival rates as it does for finding breast cancer the first time. Symptons count a lot once you have breast cancer mets. If you are in a lot of pain or can't breath, start treatments. Otherwise, hold off.
Scan results may rush you into treatments that use up options or prevent you from getting into trials that have newer drugs.
Fortunately I had a team of doctors that did not rush me back into treatment after mets showed up. We watched and did the least destructive things for 2 years before I went on Herceptin/Navelbine. My quality of life has been great.
The only scan I would really recommend is an MRI of the brain if you are on herceptin and doing well otherwise.
Isabelle in CT
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