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Hi Jo Jo,
I just recently had this conversation with my Doctor. He thought that unless I had symptoms or my markers were up that it was best not to be exposed to any more radiation. He said that ultimately it was up to me cause it has been a year since my last full body PET. I feel like I have had enough radiation in my 8 year battle with this disease, so I have decided to pass on scans for now (with the exception of regular brain MRIs of course). So I guess it boils down to what we each feel more comfortable with.
Even Dr. Larsen at UCSF didn't recomend whole brain radiation along with my Gamma Knife that I'm having this Friday. He basicly didn't think the WBR would improve my odds enough to warrant the side effects. I'm still not sure on this one, but I'm going with his reccomendation because I really hate the thought of losing my hair when I'm just starting to feel so "normal" again!
Hope I don't regret my decision, it's just so hard to know what to do sometime.
Love Kim
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