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StephN · 08-07-2005, 10:31 PM

Hi -
I also had Adriamycin and Taxotere as adjuvent chemos. This was hard on me, but I only had some peeling skin on my soles of feet and some mild tingling that did not last.

Are you taking L-glutomine?? This is a good supplement against the neuropathy. Also, B6 and folic Acid. These will help keep the nerve sheaths nourished.
Also drink LOTS of water before and after your treatment. I also ate crushed ice during the infusion and this helped with the mouth sores.

It was the bodily aches and pains that were worst for me. Took Neurontin and Aleve for this. Not sure what the UK equivalent would be. Hot baths also helped, with some soaking salts.

I started on Herceptin only 6 months after getting off the original rounds of chemo because of mets. I also got Taxol and Navelbine. My heart was OK at that 6 month time frame, it was not great, but good enough according to the MUGA scan at that time. I have not done worse since. Been on Herceptin without chemo now for over 3 years and my heart feels ok - not as good as before, but WHAT is???

All the best - and I am glad you WILL get Herceptin even if you have to wait just a little while. Ask for a heart test to see where you are with that.

08-07-2005, 10:31 PM	#3
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Hi - I also had Adriamycin and Taxotere as adjuvent chemos. This was hard on me, but I only had some peeling skin on my soles of feet and some mild tingling that did not last. Are you taking L-glutomine?? This is a good supplement against the neuropathy. Also, B6 and folic Acid. These will help keep the nerve sheaths nourished. Also drink LOTS of water before and after your treatment. I also ate crushed ice during the infusion and this helped with the mouth sores. It was the bodily aches and pains that were worst for me. Took Neurontin and Aleve for this. Not sure what the UK equivalent would be. Hot baths also helped, with some soaking salts. I started on Herceptin only 6 months after getting off the original rounds of chemo because of mets. I also got Taxol and Navelbine. My heart was OK at that 6 month time frame, it was not great, but good enough according to the MUGA scan at that time. I have not done worse since. Been on Herceptin without chemo now for over 3 years and my heart feels ok - not as good as before, but WHAT is??? All the best - and I am glad you WILL get Herceptin even if you have to wait just a little while. Ask for a heart test to see where you are with that.