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I have not been on my death bed but have fought stay off it!! Having just gone through the Miltex situation from Germany I do know you can not stop here. Al gave you some good advise. There is someone who can help its finding that resource and for some its more difficult. My oncologist told me after I went to my congress men that we as patients have more power then we realize or give ourselves credit for. I was impressed that he told me that. He is a great doctor and goes to bat for many of his patients in a battle if he thinks there is something that may save their life or give them quality of life. I don't know what to tell you at this point only that don't give up. Be firm with who ever you talk to and tell them its your life they do not understand because they are not in your shoes and you will not settle for anything but the best!!! If they can not help you you will find someone that will. They will know you mean business. I have had to do that a few times with my insurances, my oncologist(even though he is great I still have to be up front)the nurses whoever it is I am dealing with at the time. I will not back down for anything. Hope this gives you courage not to give up. Hugs, Sandy
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