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Let's see if I can focus my thoughts to write this. I just talked to my onc's office about my mri/PET results. o.k. good news first.
No brain mets. No lung mets. Liver still O.K. Excellent news, I guess.
Now for the rest of the story.
Even though I'm on weekly Taxol, tri-weekly Herceptin and Zometa...
involvement in lymph nodes around bladder.
involvement in lymph nodes in stomach.
involvement in lymph nodes other places I can't remember.
increased bone activity in right rib (it HAS been hurting some).
increased bone activity in pelvic region (ditto).
and on the spine, T10, I think, increased activity. They think it may be impinging on my cord. What they didn't know is that when I sleep on my back lately, i wake up with my left arm asleep.
So tomorrow I have my normal treatment, but Herceptin and Zometa only.
I'll probably switch to Abraxane soon. And back to weekly Herceptin, I hope. I'll stay on Zometa.
After treatment I'll have an MRI of my spine. If it looks like it's causing problems, I'll either have radiation or surgery. DAMN!!!!!
I can't help but think of Mary and my neighbor's sister-in-law, both of whom lost their battles because of spinal tumors.
Depending on the MRI, I might have to cancel my NJ granddaughter trip. She said if the MRI looks o.k., then go. But how can I go when I feel like I need to be here for new Abraxane treatment. I've told Mel all along, though, that I didn't think I'd be going. Unfortunately, he won't go without me and he SO wants to see that baby.
Any words of encouragement would be welcome now.
Love and light,
Lisa
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