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Dear Shahyan,
Is she also getting diahreah? I know that makes me very weak and tired. Also, does she have a stressful job. I left my job in February and was able to rest so much more and focus on getting well. It frees up a lot of time that whe n she feels good, she can do the things she enjoys. If I feel good once or twice a week, I go swimming. Did they do a scan of her lungs and give her a heart test? They test my heart every six weeks.I am not on the same drugs as her but I know the feeling of breathlessness and weakness. Does she take B6 for the HF syndrome? I am also taking a multiple vitamin and coq10. You are a great help to her. God Bless you both . Cathy
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