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Wow !!!
The only reason that I bought this to everyone's attention was the "Think Before You Pink" program portions of which I agree with.
Every October we are swamped with "feel good" pink ribbon campaigns with no accountability. As the principal fundraiser for this organization, I almost always hit a brick wall with these "generous" companies. Not many people realize it but it takes almost $30,000 a year to operate this website and administer our programs.
We do this all with volunteers, not one penny is paid in salaries.
Christine, Myself and the Board of Directors are extremely proud of the mature culture of our message boards. In our 4 years of operation, I only had to bar one person and delete 3 posts. That in itself is an amazing track record.
There are good organizations raise money, show accountability, and even publish where the money goes on their websites. The Komen Organization is one good example.
Others which I will not name, send us newsletters on how much they raise, but never state where the money goes.
As far as political activism, there is an organization called the National Breast Cancer Coalition, of which we are a full member, who not only lobbies in congress but also trains volunteers about how to start grass root campaigns. Just this weekend Christine wrote a letter of recomendation for one of our members to attend the NBCC's Project Lead Program.
The HER2 Support Group is presently lobbying the National Comprehensive Cancer Network to change the standards of care of stage IV metastatic breast cancer patients to include regular brain MRI's regardless of symptoms. You will hear more about this campaign shortly.
Warmest Regards
Joe
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