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In a perfect world, every onc everywhere would know the latest, best treatment for bc or mets. But just as there are 100 types of cancer, there are all kinds of oncs. Some are more conservative than others in their diagnosis and treatment. Some are more informed than others.
I believe this is where activism does come into play. But the activism I speak of is from the patient and her family. As with any disease, the more the patient knows and shares with the physician, the better the treatment.
As far as diagnosis of mets, true there is no "standard" protocol since mets show up in different ways. But researchers like Bayer are trying to help.
In my opinion, STRICTLY in my opinion, if one wants to be a bc activist, it would be best served by leaning on insurance companies and legislatures, not the folks trying to help us.
Love and light,
Lisa
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